When a family has a disability

While I was (and am still a little) curious to know whether Hannah is technically a person with a disability, I’ve known since the moment I learned of her plans to join our family that she would be influenced by disability. We focus on the positives, but I know there will be many times that she, too, is negatively impacted by ableism. All of our family members have been affected and if you have a loved one with a disability, you probably have been too.

The American Association of People with Disabilities (AAPD) is conducting a research study with Easter Seals to better understand the everyday influences of a family member’s disability. I’m really interested in their findings, but as I’m unfortunately very aware of in my own dissertation study-the data collection proceeds the results. If you’d like to participate in this study. The information is below. I did it and it only takes a few minutes.


Family Taking A SurveyThe American Association of People with Disabilities, in partnership with Easter Seals, has retained/hired national polling firm Harris Interactive to conduct a survey about how family members are affected by disability. Millions of American families today have someone in their family with a disability; by taking part in this research you are helping raise awareness of the types of issues you and your family encounter.

What’s this survey about?
In this survey, we would like to hear your thoughts on how disabilities affect you and your family.

What will the survey be used for?
The American Association of People with Disabilities and Easter Seals will jointly use these findings to educate policymakers and service providers on the needs of families living with disability today.

How long will it take?
15 minutes

Will my answers be secure?
Your answers will be secure, anonymous, and will not be used for marketing or solicitation of any kind.

If you are ready to take the survey and make your thoughts heard just click on the link below!

Click here to start the survey!

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8 Responses


  1. Hi! I guess I can’t join the survey since I’m not fr the US. Just want to share my thoughts. My kids (11 and 10) were diagnosed with OI type 1 when they turned 9. We are fr the Philippines and Many filipinos don’t know what OI is. My kids, don’t look any different fr the other kids, except for a slight bowing of their legs which you won’t notice unless you stare on them. Having OI limits some of their physical activities. Up to now they still haven’t fully accepted that they have OI. My husband is an undiagnosed type 1 OI . I’m the only one who doesn’t have OI in our family BUT I’m the one who completely accepted OI and working on OI Awareness.

  2. Cheryl says:

    Glad to see you’re blogging again Kara. I missed you. Do you have the link to where this is on the AAPD or easter seals site? Thanks… I took this survey last night. It is quite extensive…

  3. Kara says:

    Hi Cheryl! I’m glad to be back:) Thanks for the support. I’ve tried to track down where on the site this survey is located but I can’t seem to find it. I received it within an e-mail from one of my list serves (specifically one about parents with disabilities interested in adopting). I’ll keep looking though!
    By extensive, do you mean long? It only took me under 10 minutes I’d say. I’m curious as to whether certain responses add on more questions.

  4. Nice to meet you too! Your little girl is adorable :)

  5. click here says:

    An cool post there mate ! Thank you for it !

  6. MC Mobility says:

    This survey steps can really help understand between you and a person with disability. Thanks for sharing your thoughts. Keep it up!

    wheelchair accessible

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    Why people still use to read news papers when in this technological world all is
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